I suffer from fibromyalgia.
I really believe that I contracted it in Europe (London to be precise) during the Gulf War, as the clouds from the fires ignited by Red Adair (fire expert, par excellence, yeah, right) swept over the skies, fires ordered by the military to exorcise the oil spills, which were "blamed" on Iraq.
Many, many people showed up at homeopathic offices and other natural healing centres in London with mysterious "flus", flus that damaged ... the liver. At that time, many ruling class people mysteriously contracted what was then referred to ME, now referred to as Chronic fatigue syndrome. Those with money flooded the offices of those practicing colon cleansing, drinking Kambucha as if was The Cure. The point being that although the disease was no respecter of social class, the way it was treated by medical professionals and authorities surely differed.
Twenty years on, the debate still rages. Fibromyalgia is sometimes referred to the Ascension disease. But since the onset of symptomology is so rarefied as to continents, I am of the firm belief that once "contracting" it, we just must get spiritualized if we are to cope at all. This is a miasma that leaves you stunned that what your spirit is telling you to do what cannot be done by your physical body. It is not the "usual" miasma.
I find it telling that although I have had MAJOR symptomology, and some unique features to mine, that NO ONE has ever used me in clinical trials or to research the degeneration of my condition. I think that this is because of my contracting it in Europe, while going for help in North America, and my symptoms were so much greater than what was being "studied" (haha) at the time.
For one thing: I only have it on the left side! This is cetainly an anomaly, and one worth investigating, as the diagnosis is only made when a person has 11 of the 18 pressure points showing a painful reaction. How can a person with it only occuring on one side EVER get a proper diagnosis if it takes 11 points to ache on a test to get a diagnosis ...? I could only, at most get nine (9).
This has been a "blame the victim" disease, and was completely disregarded until the Danes took a stand and gave it a name.
Most people I have encountered have been scoffed at and maligned by doctors, therapists and lay people alike.
They usually stumble onto their own diagnosis. In my case, I was astonished by the similarity of my symptoms to Maggie Trudeau Elliot, the former Canadian Prime Minister's ex-wife, who "weird" symptoms which had been given a name! I read about it in a tabloid.
By that time I was up to 14 medications, some of which were to treat the "side effects" (read toxic reactions) of the others. With this diagnosis, my medications went down to a handable three (3). I looked up on .. the internet and dis-covered that most sufferers SELF DIAGNOSIS through media stories, not by news of this epidemic spreading through the usual health disclosures as per other diseases.
Depression and over sensitivity in those afflicted are features that others would like to avoid, and they do. The long term affect of not getting regular, healing sleep plays havoc with the immune system and lifestyle "choices". The costs related to staying healthy are never covered by disability allotments.
After 20 years or so of this "disorder", it has now extended into my digestive tract (or say they say) and I experience many painful falls, which have further disabled my other, right, side in the past year. My walking distance is really only about two city blocks without intense pain or having muscle spasms later on that are absolutely crippling for hours at a time. I find way to detox my liver constantly.
I have to see a medical doctor every two weeks as the symptoms have really gotten intense in my arms and legs. (Even these visits are a real pain to undertake.) And I have done rather well, as I used to get up and MOVE when things got rough. Interestingly, one psychiatrist I had here in Canada had it himself. Eventually, he died in a car crash which I feel was related to slow reaction times due to the fibro ...
It appears to be a "woman's" disease, but I strongly suspect that it affects just as many men but they cover it up with various addictions and the reports are not accurately made to health authorities. (see above!)
Anyone who would take the time to write a book about this SCANDAL is great in my book. It's too late for me to find a "cure". I have high hopes for Himalyan Goji juice (masterfully concocted by Dr. Earl Minton's team), but for the rest have given up on other healing modalities. I can only minimize symptoms. The messages in my molecules must be altered. (For info on Goji juice and the whys and wherefores, please contact me: this research has been actually been authenticated.) Even electromagnetic zapping (for which I have the highest respect) is useless. Getting "spiritually aligned" is no healer and not the answer. Many of us are spiritually aligned: we have to be.
Instead of spending TRILLIONS of dollars on the war machine, it seems to me that real research on what is ailing folks should be undertaken -- IMMEDIATELY. It is said that Congress and other ruling elites only do something when a matter effects them personally and I think that is really true.
I expect I will get "miracle" cures posted to me if I send this out, but I know that usual healing modalities do not work. And each year, more and more people develop allergies to the drugs which are supposed to help them "cope". This has been a HUGE scam, to my mind, and a very vicious killer disease.
As a sufferer, I really hope people pass this information around.
And one last remark, when you meet a sufferer of one of these truly awful diseases the reply is "I am sorry you have that", not "Why don't you do something about it?" implying that the person isn't trying everything available. They usually do! This press release doesn't get across the very real SUFFERING that we endure, if we are still living.
Thanks, Dirk!
Virginia
Dirk C. wrote:
PRESS RELEASE
Huntington Beach, CA December 27, 2005
The Institute for Molecular Medicine (www.immed.org) announces that its recently self-published book Project Day Lily, is already the No. 3 quarterly royalty earning book published by Xlibris Corporation, a subsidiary of Random House.
Project Day Lily is based on the events surrounding "Gulf War Syndrome" suffered by over 150,000 veterans (and tens of thousands dead) without proper acknowledgment or treatment to keep secret the origin of their illnesses. This is the true story of the discovery of a biological agent in veterans' blood by two American scientists as part of a massive testing program in the military and prisons and how various academic and government employees did everything in their power to keep this information secret, including murder. Their discovery has allowed patients with Chronic Fatigue Syndrome, Fibromyalgia Syndrome, Rheumatoid Arthritis, Multiple Sclerosis and other fatiguing and autoimmune diseases to finally find an effective treatment for their conditions.
The events described are true, and the scientific principles discussed in the book and have been documented in the authors' publications, reports and sworn testimony to Presidential Commissions and committees of the U. S. Congress.
Some comments on the book:
Being a health professional for 40 years, I have always held scientific research and discovery in respect. However, since personally experiencing the ravages of a chronic Mycoplasma infection, receiving help and guidance from the Nicolsons over the past 10 years and in turn helping others, I now have a slightly different perspective.
The Nicolsons are great storytellers of intrigue and menace in the scientific research world. Breaking the mold of traditional suspense novels, Project Day Lily is based on fact--many facts of which I can attest. The book is simultaneously intelligent and believable. It is intricately layered with remarkable research and detail from the opening pages to the conclusion. It is a fascinating, absorbing, eye-opening page-turner. Project Day Lily has alerted me of the danger that public policy could easily become the captive of the scientific technologically elite. I suspect that it may be happening more than any of us would want to know. And God help those of us who are unsuspecting victims!
Sharon Briggs, M.S.N., R.N., Mycoplasma Support, Shasta CFIDS
In "Project Day Lily" the Nicolsons tell their personal saga that is intertwined with major events and forces in recent American history. This linear narrative testifies about the strength of authors' perceptions and convictions. It is also a story of transformation of a couple of scientists into advocates for causes that they believe in so deeply.Stanimir Vuk-Pavlovic, Ph.D., Professor of Biochemistry and Molecular Biology, Mayo Clinic Graduate School
This book is very compelling - pointing out the corruption of the university--governmental complex coupled with Mafia money. Every conscientious physician and scientist needs to know that following the "green" is essential to know in order to develop information that is reliable to help their research and in helping their patients.
William J. Rea, M.D., F.A.C.S., F.A.A.E.M., Environmental Health Center - Dallas
A great read, complex and convoluted but compulsive. Science and politics are intricately intertwined in this chonologue. The world of scientific research is shown in its reality: academic altruism and isolation of the scientists on the one hand and the political gamesmanship, enterprise and exploitiveness that is often used to achieve the funding to allow the work to continue on the other.
Tim Roberts, Ph.D., Acting ProVice-Chancellor, Assistant Dean International, Assistant Dean Postgraduate Coursework, Faculty of Science and Information Technology
University of Newcastle (Australia)
I received the very first draft and read it with increasing amazement as I was going along. I knew Garth Nicolson from his days at the Salk Institute and knew he was (is) of sound mind. The implications, medical and political, of what is revealed in "Project Day Lily" are major. If you are interested in Chronic Fatigue Syndrome, Fibromyalgia, or the problems of our Veterans with Gulf War Syndrome, you will want to read this book, think, and wonder.
Roger Guillemin, M.D., Ph.D., Distinguished Professor, Nobel Laureate in Medicine, The Salk Institute
This is a saga of two researchers in pursuit of the truth who were pulled into the black hole of treacherous global affairs and politics and their excruciating struggles for survival. How many more Galileos and Darwins will have to suffer? Their chronicle keeps a reader in suspense from the beginning to the end. I cannot wait for a film version of it.
Tae H. Ji, Ph.D., Professor of Chemistry and Molecular Biology, University of Kentucky
Project Day Lily shatters the composed façade of academic science, exposing societal turbulence as malevolent and violent as any time in the Cold War or since. The pages seem to turn themselves. This story illustrates a time of crisis and tragedy for individuals and country so thoroughly frightening despondency and despair seem the only refuge. Yet the evil is overshadowed by the transcendent courage and steadfast determination of the main characters to push forward. Their commitment to family and integrity is inspiring and makes the battle worth fighting.
John Casey, President and Co-Founder, Nutritional Therapeutics, Inc.
During the first Gulf Conflict, Operation Desert Storm, nearly every level of government, the military, and the American people assumed that Iraq had completely failed to deploy or initiate the use of biological weapons. Leading up to the war, I directed the military component of a joint biological detection project with scientists from Stanford Research Institute. At the conclusion of the combat, even after being presented with evidence that suggested biological agents had indeed found their way to the battlefield, I dismissed the reports of Gulf War Illness. That is, until soldiers in my command and their families developed illnesses that could only be attributed to their service in the Gulf or their association with people and material that had been returned from Iraq. In my search for the truth, I met Dr. Garth Nicolson. He was a lone, and much maligned, voice in the quest for a cure. Project Day Lily is a riveting and profound essay on what really happened. It's time the public knew the truth.
Gerald Schumacher, Colonel, U.S. Army Special Forces (ret)
I received a draft of the book Project Day Lily, and I was deeply impressed by the courage of Professor Garth Nicolson and his wife Dr. Nancy Nicolson, who were determined to uncover the mystery of the "Gulf War Syndrome". Professor Nicolson, who is a prominent scientist, provided evidence, that the "Syndrome", was not due to psychological effects, which caused the suffering of more than 150,000 veterans, but was the result of infection with a Mycoplasma strain, which was apparently modified genetically. As this approach contradicted the official version, the two scientists were attacked mentally and physically and had to leave their positions and to establish a new Institute--The Institute for Molecular Medicine--where they could continue their studies without interference. This book provides an interesting insight into the relationship of science and politics in the United States. It describes the experience of two devoted scientists, who did not hesitate to tell the true story about the Gulf War Syndrome. I am sure that every reader will be deeply impressed.
Uriel Bachrach, Ph.D., Professor Emeritus, Hebrew Hadassah University, Jerusalem
Project Day LilyReleased: October 2005
Authors: Garth L. Nicolson, Ph.D. and Nancy L. Nicolson, Ph.D.
ISBN: 1-4134-8519-7 (hard cover);
ISBN: 1-4134-8518-9 (soft cover)
Publisher: Xlibris Inc., 3 International Plaza, Philadelphia, PA 19113.
Toll Free Tel orders: 1-888-795-4274.
Fax: 1-610-915-0294.
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